My son Christian would still be living in horrible pain if not for the wonderful doctors at Thoughtful House. After enduring 2 years of nightmarish, non-stop diarrhea and traveling all over the country meeting doctor after doctor who pronounced Christian “autistic but fine” or “he’s autistic, what do you expect?” or “he definitely isn’t autistic but we don’t know what’s wrong” Christian finally got the medical help he needed at Thoughtful House. Dr. Wakefield, Dr. Krigsman and Dr. Jepson were the ONLY physicians with the courage to address the autism/ GI disease and help kids like mine. While the AAP and the rest of the medical community turned their backs on our children for fear of uncovering why so many children were regressing into autism with GI disease, TH opened their doors and actually treated our kids. This determination came at great personal and professional cost and I know I speak for so many parents when I saw we are infinitely grateful.
Katie Wright is a Contributing Editor to Age of Autism. She has two young boys. Her oldest son, Christian, is severely affected by autism. He developed normally; smiling, talking, walking; only to lose every skill and every word by the age of 2 and a half. Upon the advice of medical professionals Katie and her husband were advised to pursue only high quality behavioral therapy, speech and OT for Christian. It had no meaningful impact on Christian until his parents sought help from DAN! doctors who treated the underlying causes of Christian's descent into autism. Christian has improved but still has far to go. He has Inflammatory Bowel Disease, the measles virus in his gut and an immune system akin to a late stage AIDS patient. Christian does not have a psychiatric disorder. Before autism, Katie Wright was the Clinical Director of Sexual Assault Crisis Center in Stamford Connecticut. Katie is proud to serve on the Boards of NAA and SafeMinds.
I don't want one more R and D/stock holder vaccine persons laughing at us, scorning our children like this. I want a proud army of mothers, to forget that the mainstream media has any interest in exposing this GIANT SECRET, and go to the mothers, the very ones who will MAKE THE DECISION, and tell our stories...this is our only last and true hope left. As for me, that's my mission anytime someone asks why, or, if I am in a situation to do the vaccine story missionary work.
If autism is so genetic, my three grandboys would have it...coming from having two from me...it's just nuts...I see them...they are doing SO well, no ear infections, no gut problems, TALKING, PLAYING, conversing with their mothers...this is a testament to me, that TOO MUCH, TOO SOON, is ruining our children. The mothers had to be vigulent...they had to make sure THEY were not mercury toxic (and they have the MTHFR..they even had lyme, and had to treat that...they had to eat organic, nothing MSG or GMO and did home births and minimally evasive births with no immediate cord clamp or drugs. This is what WE have to do, to cirumvent our world and the way it damages our children.
I very sure, that if we don't stop this misinformation, and spread our own truths amongst mother to mother, we will continue seeing kids being damaged.
We got our kids scoped with a GI who was on the phone with Thoughful house...the GI guy at first wouldn't believe my story...but agreed thankfully to the procedure. My kids had Hyperplasia, and the measles virus genome in their guts. They also had Lyme spirochetes (oft not thought of) as another ocntributor to SIBO. Treating that, and getting certain enzymes and protein rich meals made my kids sleep through the night, have less seizures in one child, and treating the infections with monolaurin, antivirals, and antibacterials for the lyme, also helped them tremendously. Since they were OLDER in their teens at that time, I was unable to get them ALL THE WAY BACK, but if I didn't, I would have children going psychotic, loosing bowel control, and thoughts of me not dealing with it, and having to put them in an institution. Thoughtful house saved my kids, and that is what should have been told last night.
Posted by: Kathy Blanco | August 31, 2009 at 12:31 PM
My son received his MMR booster at age 5 (why I allowed that to happen I don't know, it's a decision I GREATLY regret), he regressed immediately after the vaccination and within 6 months he went from being completely potty trained to completely bowel incontinent. We saw doctor after doctor and all we heard was it's behavioral due to autism spectrum disorder. One GI specialist after 18 months of seeing my son determined that 'until he had a developmental epiphany and chose to oblige to normal toileting protocol he would continue to be incontinent'. That's right, blame having diarrhea 5-6 daily on my son...it's all behavioral, he's acting out for attention. He then went on to look my son (8 yrs. old at the time)in the eyes and told him "If you don't stop pooping your pants I'm hooking you to a bag for the rest of your life to poop in, maybe then you'll decide to act better." This is the type of treatment that we are receiving from these 'specialists'. Nobody to listen, nobody that gives a shit that our kids are suffering on a daily basic.
Until we found Thoughtful House...Dr. Krigsman, Dr. Jepson, and Dr. Wakefield. My son has been under their care for 2.5 years and has made amazing strides. My son's pillcam showed some of the worst GI damage Dr. Krigsman had seen. He was diagnosed with Autistic Enterocolitis (and screw those that don't believe this disease exists. I offered many a time to those that question it the opportunity to come do my laundry for me and THEN tell me it doesn't exist). With care under these doctors the disease is becoming more manageable. He went from up to 3 accidents a DAY for 5 YEARS to now only 3-4 accidents a month. So while he is not completely in remission he is getting closer. These doctors know what they are doing. They stand tall in the face of adversity and speak LOUD and CLEAR that our children are sick. Believe it.
Posted by: Kecia | August 31, 2009 at 11:14 AM
Just holding my breath to find out what damage the addition of the swine flu will do to more children ... certainly not mine.
Posted by: Kathy | August 31, 2009 at 10:24 AM
Thoughtful House and the other DAN! Drs in this country are doing amazing work with our children. If we were all being duped there would be parents lined up to tell the story of how they were conned out of thousands of dollars but this is not the case.
How the producers could go to Thoughtful House and only report on one patient,t in whom doctor Krigsman found not much, represents an ubalanced view of the work Thoughtful House is doing. To tell the story of recovery would have completely shifted the tone of their show. It would have shifted much more credibility toward Dr. Wakefield and put greater doubt on Deer and Offits perspective.
Posted by: Pamela | August 31, 2009 at 09:24 AM
Posted by: kim | August 31, 2009 at 09:21 AM
And Angela, I completely agree with you. I was so disappointed in Matt Lauer. The show was incredibly biased and slanted. He made parents look like horrible people out to put their children through ANYTHING to satisfy their belief of what is wrong. He should have hit harder on the fact that parents are trying to relieve their children's pain. Something ANY parent would do!!!I was especially disgusted with the lack of following comment to the statement put forth about parents not knowing the science. There are NO parents who know and understand the science more than parents of vaccine injured children. I wish that we could see all the footage that was edited. Is it possible to get the unedited transcripts of the show? And how nice it would have been for David Kirby to have been invited to counter the fact the Brian Deer was allowed to have a say! And certainly his conflicts of interest were NEVER brought to light.
Posted by: kathleen | August 31, 2009 at 08:45 AM
My son, who was developing in a mostly typical manner, lost his ability to walk and talk in the TWO days following a routine vaccine appointment (and various jabs) at 15 months.
The second anyone start denying the damage that vaccines can cause - I stop listening. Your message has lost me, when you deny my son's experience.
Posted by: LivingWithPDD | August 31, 2009 at 08:32 AM
Posted by: Deb O. | August 31, 2009 at 08:13 AM
You're a powerful addition to Age of Autism.
Thank you, friend.
Posted by: Stagmom | August 31, 2009 at 08:01 AM
The "interview" was so obviously slanted it was disgusting and insulting to one's intelligence.
And why didn't they include a middle-ground - i.e., parents who want to space out vaccines and not "rush" out to get 9 shots in one day?
And why didn't they interview parents like me, whose child is not autistic but has weird auto-immune and visual problems? Or my sister's child who came down with Type 1 diabetes AT SIX YEARS OLD? Or my other sister's child with severe asthma?
Why didn't they interview some pediatricians and ask them "back in the 90's and early 2000's, did you advise parents not to vaccinate when their children were sick?" My ped NEVER did - my son had vaccines a week after he'd been extremely ill in the hospital! I recently got a calendar from my insurance company trumpeting the benefit of vaccines with a little * - "don't give when sick." Hmmmm.
And didn't you love when Offit bragged about voting against the smallpox vax? The first thought in my mind was "no wonder, since you don't own the patent to that one."
I will never watch Matt Lauer again. What a boob and a patsy.
Posted by: Angela | August 31, 2009 at 07:07 AM