Posted - 07/18/2007 : 00:20:25
just like to say that I think this web site is
wonderful and its nice to see mothers
questioning the 'experts'information.
My son is now nearly 10 and believe me its been
one hell of an uphill battle, given the chance
to of had all this information and questions I
think things may of been very different all
those years ago, I certainly wouldnt of agreed
to the MMR for him.
He was a lovely baby , very bright and always
happy and smiling. He developed very well
sitting at 6 months eating solids babbling and
even a few basic words at 1 year , first steps
around this time too . Wow we were so happy.
He had his MMR around 15 months as scheduled in
'the little red book'
he cried all the way home which wasnt unusual
for having a needle stuck into your leg.
he cried most of the night and so we gave him
calpol like we were told . The next day he was
very quiet not his usual self but didnt think
much of it over the next week he became very
pale and restless crying and screaming a lot (
the doctor on many occasions said it was just
temper tantrums and the health visitor).
the week after he had a fit after tring to bath
him he screamed and became rigid and
inconsolable ( i was so frightened ) i phoned
the nhs helpline who said it sounded like a fit
and to see the doctor who then told me agian
that it was most likely to be a temper tantrum.
the weeks passed and he deteriorated more the
screaming just got unbearable he didnt talk
anymore, his eating regressed back to liquid
food,he couldnt walk anymore.
I was accused by family of molicodling him too
much thats why he was like a baby!
my relationship broke down because of this and
had to cope on my own not knowing what was
happening to my child.
on his 18 month check he failed everything but
still no investigation only with his hearing
which i insisted was fine.
I saw a documentary on trevor macdonld about
autism and it was like watching my son and the
same symtoms I though OH MY GOD THATS IT!
still nobody would listen (proffesionals) it was
only after 18 months of failed hearing tests and
putting him under aneasthetic to test him would
anyone belive me and consider the
possilbility.He was seeing a consultant for
bowel problems at the time who then reffered him
to an assesment unit for a week, after which I
finally got the answer that I was right all
My son then was able to get the help and support
that has helped him to get some sort of life and
myself able to cope.
Wow sorry I have waffled so much ...but its nice
to let people know what I have been through (
and believe me this is the short short
version!!!) any way lets leave it there for now
its just too upsetting to remember.
Like i said at the beginning I just wish Id
KNOWN better and had that CHOICE.
love to you all xx